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Additional Resources

Legislative Acts

The Cancer Agency Act and Regulations
An Act respecting the provision of cancer care services and the Cancer Agency and to make consequential amendments to other Acts.

The Health Information Protection Act (HIPA)
An Act respecting the collection, storage, use and disclosure of personal health information, access to personal health information and the privacy of individuals with respect to personal health information and making consequential amendments to other I.

Cancer Registry Associations/Databases

• Statistics Canada
Statistics Canada produces statistics that help Canadians better understand their country—its population, resources, economy, society and culture.  In Canada, providing statistics is a federal responsibility. As Canada's central statistical office, Statistics Canada is legislated to serve this function for the whole of Canada and each of the provinces and territories.

• Research Data Centre Program (RDC)
Canadian cancer registry data can be accessed through Statistics Canada’s RCS program.  RDCs provide researchers with access, in a secure university setting, to microdata from population and household surveys. RDCs are staffed by Statistics Canada employees and are operated under the provisions of the Statistics Act in accordance with all the confidentiality rules and are accessible only to researchers with approved projects who have been sworn in under the Statistics Act as 'deemed employees.'
RDCs are located throughout the country, so researchers do not need to travel to Ottawa to access Statistics Canada microdata.

• The Real Time Remote Access System (RTRA)
The RTRA system enables fast access to Statistics Canada microdata. It is an online remote access facility allowing users to run SAS programs, in real time, against micro-data sets located in a central and secure location. A full range of descriptive statistics is available through the RTRA tool. RTRA users can calculate frequencies, means, medians, percentiles, proportions, ratios, and shares.

• Canadian Cancer Registry (CCR)
The CCR is an administrative database beginning with cases diagnosed in 1992 and is maintained by Statistics Canada. CCR includes cancer incidence data on alive and deceased patients that are collected by provincial and territorial cancer registries.
Ultimate authority and responsibility for the completeness and the quality of the data reside with the provinces and territories. The data that comes into the CCR describes both the individual with the cancer, and the characteristics of the cancer.

• North American Association of Central Cancer Registries (NAACCR)
NAACCR was established in 1987 and is a professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; certifies population-based registries; aggregates and publishes data from central cancer registries; and promotes the use of cancer surveillance data and systems for cancer control and epidemiologic research, public health programs, and patient care to reduce the burden of cancer in North America.

• Cancer Incidence in North America  (CiNA)
Produced annually through NAACCR, the CiNA report provides the most current cancer incidence and mortality statistics for the United States and Canada.

• Cancer Maps for Invasive Cancer Incidence Rates in North America

• Canadian Partnership Against Cancer (CPAC)
CPAC was created in 2007 by the federal government with funding through Health Canada. Its primary mandate is to move Canada’s cancer control strategy into action and to help it succeed through coordinated system-level change across the full cancer care continuum—from prevention and treatment through survivorship and palliative care.

International Agencies

• International Agency for Research on Cancer (IARC)
IARC is the specialized cancer agency of the World Health Organization. The objective of IARC is to promote international collaboration in cancer research.

• International Association of Cancer Registries (IACR)
IACR is primarily for population-based registries, which collects information on the occurrence and outcome of cancer in defined population groups (usually the inhabitants of a city, region, or country). For each new cancer case, registries record details of the individual affected the nature of the cancer, information on treatment, and on follow-up especially with respect to survival from the disease. Registries play an important role in research into the cause of cancer, both by providing data on patterns and trends, and in different types of epidemiological study.  They comprise an essential element in the planning and monitoring of cancer control strategies, and for identifying priorities in public health.

• Cancer Incidence in Five Continents (CI5)

CI5 is the result of a long collaboration between the International Agency for Research on Cancer and the International Association of Cancer Registries. The series of monographs, published every five years, has become the reference source of data on the international incidence of cancer. The CI5 databases provide access to detailed information on the incidence of cancer recorded by cancer registries (regional or national) worldwide.

Education and Certification

• Saskatchewan Polytechnic Health Information Management Diploma
If you’re detail oriented, self-motivated and want a unique career in healthcare, consider Saskatchewan Polytechnic’s Health Information Management Program. You’ll learn how to collect, organize and manage large amounts of health information, all while meeting privacy standards.

• Canadian Health Information Management Association (CHIMA)
CHIMA represents health information management (HIM) professionals across Canada and is the certifying body and national association that represents leadership and excellence in health information management. CHIMA supports continuing education and professional practice of HIM professionals, develops strategic partnerships to advance the development and integration of electronic HIM, and advocates for and strengthens the HIM role in healthcare settings across the continuum of care.

• National Cancer Registrars Association (NCRA)
NCRA is a not-for-profit association representing cancer registry professionals and certified tumour registrars (CTR). NCRA's primary focus is education and certification.  NCRA provides ongoing training through various mediums including annual conferences, workshops, publications, and their continuing education credit program.

SCA Home | Research | Cancer Registry | Additional Resources